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The Huntington Disease Society of America Center of Excellence at Hennepin County Medical Center is the official title of our HD clinic here at HCMC. At this center, one of the avenues for treatment and care of our patients is research. Since 1996, our clinical site has been an active member of the Huntington Study Group (HSG). The HSG is an international consortium of scientific and academic centers collaborating on Huntington’s disease research. Our researchers are also involved with other investigators and are part of the Huntington Project. “The Huntington Project brings together clinical and basic scientists, individuals and families affected by Huntington’s disease (HD), advocacy groups, and all others in the HD community to find and develop treatments that make a difference in the lives of those affected by HD.” We have been involved with several research studies over the years. A list of these studies is provided below. Recruitment efforts for all but one of these studies have closed: PREDICT-HD is still open to recruitment. Please read the section provided below on the PREDICT-HD study, and if you are interested in hearing more about this study, contact Dawn Radtke at 612-873-2943. She will be glad to answer any questions about the study and whether you may be eligible to enroll. CURRENT TRIALS: To read more about each individual study, click on the highlighted study title below. Enrollment: OPEN Please contact: Dawn Radtke at 612-873-2943 Enrollment: Closed End of Life Care in HD-- a retrospective chart review study
COMPLETED TRIALS: To read more about each individual study, click on the highlighted study title below. TETRA-HD (initiated in 2003) LONG-TERM TETRA-HD (initiated in 2004) QUALITATIVE Interviews for the PHAROS study (initiated in 2003) Prevalence of Gluten Sensitivity in HD (initiated in 2001) (initiated in 2000) (initiated in 2000) (initiated in 1996)
We’d like to encourage you to also take a look at some of the linked sites that offer more information on other research in HD:
Special Note: We would like to acknowledge and thank the HCMC Service League for providing grant funds to help maintain these web pages.
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HDSA Center of Excellence at Hennepin County Medical Center