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Helpful Web Links Huntington's Disease Society of America (HDSA) This website has information about the HDSA, general information about HD, genetic testing, and HDSA’s Centers of Excellence. There are links to The Marker, HDSA's magazine, and publications on many HD related topics. Huntington's Disease Society of America (HDSA) – Minnesota Chapter This website has information about the Minnesota Chapter of the HDSA and its activities including statewide support groups, volunteer opportunities and fundraising activities. There are also research and legislative updates. The HD Lighthouse The HD lighthouse's mission is to present and explain the latest research findings about Huntington's disease. This website provides basic information about HD, extensive research updates and connections with others in the Huntington's disease community. Hereditary Disease Foundation The Hereditary Disease Foundation supports cutting-edge science through grants, fellowships, and the workshop program. The Foundation continues to build a research community committed to the cure of Huntington's disease and related disorders. This site provides access to current research, grants, newsletters and HD resources. Caring for People with HD www.kumc.edu/hospital/huntingtons Developed by the Department of Neurology at the University of Kansas Medical Center, this page is a site where patients, families, professionals can find help in caring for people with Huntington's disease. Included are articles on specific care issues, as well as a list of other sites related to Huntington's disease. Huntington Society of Canada http://www.huntingtonsociety.ca/english/ On this site you will find information about the Huntington Society of Canada. There is general information about Huntington Disease and related topics, links to other HD websites and publications. HD Advocacy Center Huntington's Disease Advocacy Center was started to help family members affected by Huntington's Disease. This site provides Information & FAQ sheets for caregivers, those at risk, and those that have tested positive for HD. National Institute of Neurological Disorders and Stroke (NINDS) www.ninds.nih.gov/disorders/huntington/huntington.htm NINDS is the leading federal supporter of research on disorders of the brain and nervous system. This site provides information about diagnosis and research related to Huntington's Disease. Huntington's Disease for Families www.huntingtondisease.tripod.com A very comprehensive site provided to assistHuntington's Disease familiesin finding quality care and support. A wide range of information is available for all stages of Huntington’s disease, caregivers, children and at risk individuals. Huntington Study Group www.huntington-study-group.org HSG is a non-profit group of physicians and other health care providers from medical centers throughout the world. This site provides information on clinical research and ongoing clinical trials for Huntington's disease. Huntington Project The Huntington Project’s goal is to bring together the entire clinical research community to engage to develop treatments that make a difference for HD. This site has information about current clinical research studies.
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HDSA Center of Excellence at Hennepin County Medical Center